The “Ode to Joy” PSA explains the key symptoms of narcolepsy.Ĭontact the sleep team at an AASM-accredited sleep center to discuss concerns about narcolepsy or any other sleep problems. Cataplexy is a sudden and transient episode of muscle weakness accompanied by full conscious awareness, typically triggered by emotions such as laughing, crying, or terror. Finally, Project Sleep partnered with IFC Films and “Ode to Joy” Director Jason Winer to create a public service announcement. Narcolepsy is defined as excessive daytime sleepiness with cataplexy with or without abnormal REM sleep phenomena such as sleep paralysis and hypnagogic. Project Sleep also developed “Ode to Joy” resources to help viewers discuss the film and learn more. Project Sleep CEO and President Julie Flygare, who has narcolepsy with cataplexy, wrote a review of “Ode to Joy.” She analyzed the positive and negative aspects of the movie’s depiction of narcolepsy. Narcolepsy is a neurologic condition that causes a person to experience extreme sleepiness during the day without warning. Therefore, it’s important to have resources and educational tools that can connect viewers with the help they need. The film follows him as he tries to navigate love and romance while dealing with cataplexy.Īs with any depiction of a medical condition, the portrayal of narcolepsy in “Ode to Joy” might cause viewers to recognize symptoms in themselves or a loved one. For example, he listens to classical music and thinks about real-world tragedies. Therefore, he has a variety of strategies to limit joy in his life. In Charlie’s case, cataplexy tends to occur when he experiences joy. Cataplexy can even cause your body to collapse, even though you remain conscious. It can cause your head to drop or knees to buckle. Sudden paralysis of some or all muscles brought on by laughter, anger, fright, or strong emotions a hallmark of narcolepsy. Cataplexy is a sudden loss of muscle tone that is usually triggered by strong emotions. Cataplexy is a sudden muscle weakness that occurs while a person is awake. Apart from cataplexy, the clinical diagnostic criteria are similar to that of narcolepsy with cataplexy. The film is about a man named Charlie (Martin Freeman), who struggles to manage cataplexy, one of the key symptoms of narcolepsy. Among people who have narcolepsy and cataplexy, there is a loss of brain cells that produce hypocretin, also called orexin, a neurotransmitter that controls the sleep/wake cycle. Narcolepsy is a rare and often disabling hypothalamic disorder that presents with sleepwake dysregulation (excessive daytime sleepiness (EDS), cataplexy, hallucinations, sleep paralysis and. Narcolepsy without cataplexy has been described as a phenotypic variant of narcolepsy with cataplexy, but is now individualized as a diagnostic entity in the new International Classification of Sleep Disorders, 2nd edn (ICSD-2). The main character in the new film “ Ode to Joy” is someone we don’t often see in movies or on TV: a person who has narcolepsy with cataplexy. Resources for Health Care Professionals.See Insomnia, Narcolepsy tetrad, Sleep apnea syndrome, Sleep disorders. narcolepsy Sleeping sickness Sleep disorders A condition characterized by uncontrollable, recurrent, brief episodes of sleep associated with excess daytime sleepiness, cataplexy, sleep paralysis, hypnagogic hallucinations, and often disturbed REM sleep narcolepsy affects 125,000 US–prevalence 40/10 5 it is defined as a daytime mean sleep latency of < 5 mins, with verification of REM in 2 of 5 daytime nap periods narcoleptics may have amnesia for the 'absences,' have fallen asleep while driving or while at work and prefer shift work as 'drowsiness' is more socially acceptable it may also be accompanied by sleep paralysis Prevalence 1:600–Japan, 1:2400–US, 1:500, 000–Israel, ♂:♀ ratio 1:1, onset age 15– 35 98-100% of narcoleptics have HLA-DR2 and/or HLA-DQw1 Clinical Narcolepsy tetrad if accompanied by cataplexy, Pt feels a sense of absolute urgency for sleep in often inappropriate situations–while standing, eating, carrying on conversations, accompanied by blurred vision, diplopia, ptosis Management Pre-planned 'catnaps' throughout day, analeptics–ie, long-term stimulants–eg, methylphenidate, dextroamphetamine or tricyclic antidepressants that inhibit re-uptake of norepinephrine and serotonin MAOIs may eventually cause tardive dyskinesia. The American Heritage® Medical Dictionary Copyright © 2007, 2004 by Houghton Mifflin Company.
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